Wednesday, May 28, 2014

Anticipating Outpatient Life

            In a couple of hours I will bring David home from MGH. We weren’t expecting this, but it will be a great relief to all of us to have him actually at home. He has been in a hospital, first in Korea, then at Walter Reed, and now MGH, since March 19th, 10 long weeks.

            We did land at Hanscom Airport Friday evening and arrive at MGH via ambulance without incident or even heavy holiday weekend traffic. David’s bone marrow biopsy was yesterday, 27 May. We’re waiting for results. He also had an echocardiogram and pulmonary testing.

            The game plan is for David to regain some muscular strength and cardio endurance before the next phase, which will involve completely eliminating David’s immune system prior to transplanting, via IV, Sam’s stem cells. Hopefully the new stem cells will accept David’s organs, and David’s body will reciprocate. This will be a critical time for David. If all goes well, he will return home to recuperate. More about that as it happens. Briefly, he will spend the first 100 days post-transplant, at the hospital and then at home, with some restrictions. For example, he will not be able to go to public venues: church, movie theaters, public transit, etc, but will be able to go for walks in parks.

            For now, I’ll be able to cook for him and he can enjoy the freedom to go outside. What would you do after 10 weeks in hospitals?

3 comments:

  1. GREAT NEWS! I'm in the car with John and Steve and Maria, so just read your post out loud. Thanks for letting us know.

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  2. I just addressed a card to him at MGH -- I'll re-route it to home. Good news.

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  3. I know what I did after 11 weeks in hospitals - I was hospitalized on 6/21/1981 - 8/5/1981 as I went into early labor with Samuel and had blood pressure of 70/40 on the Yutopar used to rein in labor [that was week 26, more or les] What I wanted to do was sun and wind and real food & snuggles. No question. And yes, you read that blood pressure right.

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