Tuesday, December 11, 2018

Walk along the Charles

Last week I had a psychiatric consultation in Downtown Crossing, Boston. I felt happy as I left. The consult had taken about 40 minutes. Although I had plenty of tasks to accomplish at home, I decided to walk to the Charles/MGH stop of the Red Line. As is my wont, my walking ambitions grew as I walked; on my way across the Common, I decided to walk along the Charles River and cross the Mass Ave Bridge, heading for MIT; there’s a Red Line stop there.

That morning, I would have said I didn’t have time to walk. But many years ago, Jim advised a stressed-out client to paint his office. Change of pace. Taking charge of a small thing (though painting an office sounds daunting). So, walking toward home through Boston and Cambridge was my painting job. I calculated that I would arrive home about 6:30 p.m.: a four-hour walk, roughly a half-marathon. It was getting dark by 4:30, at about the time I got to the bike path, so I headed towards Mass Ave on Lake St. in Arlington. When my phone battery was down to 6%, I emailed Jim and turned off Runkeeper, my GPS app. Jim called me (4% battery life) just as I passed the Blue Ribbon BBQ restaurant, nine and a half miles into my walk. He suggested we meet there. Perfect timing.

The walk reminded me of a bittersweet experience walking along the Charles River when David was inpatient at Mass General (MGH). It was a lovely spring day and again I was relieving stress by taking charge with a long walk. As I walked along the Charles, I looked across at a playground area that had adult exercise stations. A young man, shirtless in the cool spring weather, was working out. I was both happy for his health and sad for David’s physical deterioration. I savored the hug my Army guy gave me when I saw him at Christmas time before he got sick. We were at a Christmas concert of R’els in Manchester, Connecticut, and he surprised us: walking into the church when we weren’t expecting him. He had his fatigues and Army boots on and his crewcut was a prominent feature of his bare head. Those strong arms and chest and back. I didn't realize how soon they would be gone.

Tuesday, December 4, 2018

Worldwide Candle Lighting

Join me, if you can, for The Compassionate Friends' annual Worldwide Candle Lighting, this Sunday, December 9th, at 7 p.m. your local time. Imagine the candlelight crossing the country and world in a 24-hour commemoration of all those who died too soon and are sorely missed. Leave a comment if you do it.

Compassionate Friends


I went to Bereaved Parents of Middlesex County tonight. It’s a part of The Compassionate Friends, a support group for parents, grandparents, and siblings of a child, grandchild, or sibling who has died.

I hadn’t been for a long time: nearly a year and a half. But I had an experience last week at our church’s wreathmaking party: the first much-anticipated holiday event of the season. There’s a program (this year it was Benjamin Britten’s A Ceremony of Carols complete with a harpist), and the  optional making of wreaths. (Mine hangs on my kitchen porch.) The congregation sings a few Christmas carols. I love Christmas, especially the music. But as the first chords of the organ sounded, I started to weep, holding myself so I wouldn’t shake with sobs. Slamming into an unforeseen brick wall.

A few days later I was visiting a friend in the hospital and told him of my experience. “There’s no expiration date on grief,” he wisely said.

So, tonight I went to Compassionate Friends. I actually went last night, but found one other mother standing outside the darkened church building. We had a good, healing conversation. She asked, “Does it get better?” I wish I had words for it: better is not quite it. But, yes, I can now feel happiness and even joy and can hear a helicopter without being overcome with gut-wrenching emotion.

We later found out the meeting had been changed to Tuesday. I had received an email about the change, but when I received it I wasn’t planning to go, so I'd forgot about it.

Each story is different: the commonality is the heartbreak and heartache. I had forgotten the closing tradition. We stand together, holding hands around the table and speak our child’s name, “Good night, David.” That is very powerful and catches me off-guard every time. I can barely speak his name. I realize that I’m not able to truly wish David good night. I’m crying right now, as I write this. It’s a lonely, desolate feeling.

It’s a comfort to meet together, in “the club no one wants to join.”