White Counts Down

            Two pieces of good news this morning:

1.      David’s white counts are down by half, from 53.54 on Saturday, 9 May 2015, to 29.68 this morning (11 May). (What are we aiming for? Between 4 and 10.)

2.      We got to go home before noon, since Dr. Fathi appeared early. (We were scheduled to see him at 1:20 p.m.) Since we got to Cox 1 at 7:20 a.m. for a fasting blood draw, that’s great news.

David continues to do well. He’s tired most of the time, but that’s been true for months. He is experiencing nausea, probably from the new clinical trial drugs, MEK and BYL. Since the nausea doesn’t last long, and it is over before anti-nausea meds would begin to work, he’s just living through it.

The white count news is really heartening. He is on 6 grams/day of hydroxyurea, but he’s been on 5 or 6 grams for a while, so we’re hoping this drop is due to the MEK and/or the BYL. Time will tell.