We saw Jess
Driscoll, Dr. Chen’s nurse practitioner, at Mass General yesterday. She was
upbeat and optimistic. She decreased the anti-fungal medication, fluconazole.
Fluconazole interacts with tacrolimus, the anti-rejection drug, making it more
effective. Thus, lowering the dose of fluconazole has the same effect of
lessening the tacrolimus. This increases the risk of graft versus host disease.
Skin, digestive tract, and liver are the usual organs attacked. There is no
sign of skin rash or digestive distress. The liver function labs are normal.
David’s
white blood cell count remains steady at 2.3. (Remember? The reference range
that we’re shooting for is 4.5 to 11.)
We’re
halfway through the “quarantine”, no public contact for 100 days. Jared
Nielson, David’s home teacher, continues to come each Sunday to give David the
sacrament. This week Stanley accompanied him. Stanley was just ordained a
priest, having turned sixteen, and blessed the sacrament at church for the
first time. It was a happy occasion.
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