David returned to Lunder Monday morning,
Memorial Day. He hadn’t eaten anything for several days, was dehydrated and terribly
nauseated. He had no appetite and severe pain in his throat. Dana, our favorite
Lunder 10 nurse, who works weekends and holidays, started IV saline and some Ativan,
which is very effective for nausea, (as well as anxiety and insomnia). The Ativan got rid of the nausea and knocked him out minutes after it started
flowing into his vein.
Ours was an unscheduled visit, and the infusion room was
full. Dana put us in the patient and visitor lounge and taped a sign on the
door, ‘Lounge Closed’. Last May, late in our time at Walter Reed, there was a
night when David couldn’t sleep. We walked down the hall to a lounge and he lay
down on the couch. “This feels so good!” he said. The sweet nurse on duty let
us stay, even though it was against procedure to have a patient sleep in the
lounge. Such a simple pleasure, to get out of bed and nap on a couch.
In the Lunder lounge, David was quite comfortable.
Dana said, as she worked, “I’m trying to keep him out of the emergency
department.” She succeeded. He moved into room 1092 Monday afternoon.
David hadn’t taken his clinical trial drugs Monday morning. On
Tuesday I arrived at Lunder 10 around 9 a.m., to deliver the refrigerated BYL719
study drug. That was unnecessary: Dr. Fathi stopped the MEK 162/BYL 719 clinical
trial. The drugs were not lowering the white blood cell count and were probably
causing the throat pain, nausea, and lack of appetite. It’s disappointing.
Tuesday they took a chest x-ray to
investigate his hoarse cough and discovered pneumonia. Later in the day they
did a CT scan, which showed a large consolidation (not a good thing) in the
upper right lung and little dots scattered throughout the lungs. Since a lung
infection could be TB (tuberculosis), we all have to wear heavy-duty masks,
which are hot and bothersome. But I certainly don’t want to either contract or
pass along TB (or any infectious disease). It’s quite unlikely he has TB, but
they must take precautions.
At 5:30 p.m. this evening David was
sleeping soundly. He was in good spirits yesterday, and sounded chipper on the
phone this morning, but now he’s conked out. Yesterday afternoon he spiked a
fever of 104°. When Jim arrived to visit, the nurses were busy applying ice
packs in an effort to lower his temperature.
R’el, Peter, Xiomara, and Andrew
drove up from NYC Friday night for the holiday weekend. David enjoyed playing with Andrew and made some
videos on his iPod. Happily, Andrew has decided to enjoy his Uncle David’s
company, even when his mother isn’t in the room.
Saturday night we watched a Captain
America movie, Winter Soldier. R’el
synchronized the start of the movie with Matt in Chicago. At our house R’el,
Peter, and David sat at their laptops (as did Matt in Chicago) and messaged
commentary as the movie progressed. I was content to just watch the movie.
David did comment afterwards that he missed a bit of the action while typing
and reading comments.
The goal for now is to get David
strong enough to come back home, one day at a time.
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