It’s been over a week since I last wrote. From Saturday through
Wednesday (Aug 1 through Aug 5), there was, as my mother would say, ‘nothing to
write home about’. The Monday counts showed the white blood cell count rising
from the low 1s to 8.29: concerning, but still low.
However,
the blood draw on Thursday, Aug 6, revealed that the counts had sky-rocketed to
130. For some people that would be a lethal level. However, as I’ve learned,
leukemia is an old person’s disease. I had only ever heard of childhood
leukemia, and it does accounts for 1 out of 3 childhood cancers, but it is
rare. So, since most leukemia patients are older and less fit than David was at
the start of his illness (he was an active Army medic), there are a lot of
unknowns in his case. Well, one major unknown: how long he has to live.
It’s Sunday,
Aug 9th now, and I’m still trying to adjust to the sudden change in
his outlook. Sam arrived Saturday morning for a weekend visit from California;
he had not seen David since April 28th. Annie has been able to call frequently
from China; she arrives home tomorrow night.
Last
weekend R’el brought our sweet grandson, Andrew, for a four day visit, the first
overnight in his two-year-old life. He’s adorable, of course. He repeats
everything you say to him, picking up words left and right. He learned the word
‘later’ while he was here. On Sunday afternoon, when he was told it was time to
get in the car and go home, he had a melt-down and wailed, “Later!”.
Unfortunately,
but for a happy reason, Peter and Xiomara can’t visit right now. Xiomara is
nine months pregnant and can’t risk travelling away from home right now.
Matt arrived
by car Saturday afternoon. He has accepted a job offer at Clark University in Worcester, less
than an hour away from Lexington. He will hunt for an apartment and starts work
Aug 31st. Clark experienced a brain drain when some of its faculty
moved to University of Chicago: Matt’s move reverses the direction of the brain
drain.
Friday night Jim slept on the floor next to David’s hospital bed
in the dining room; Saturday night Sam slept on the couch nearby. David has
alternated between sleeping and lying quietly awake. He reads The Economist in snatches and continues
to sip warmed honey water.
For
weeks David has had throat pain fairly constantly. Two days ago his hip started
to hurt. Martin, the weekend hospice nurse thinks it is from lying still too
long. It probably won’t go away, but we hope the continuous morphine will take
the edge off both pains.
It’s
a peaceful Sabbath day. I’ve started the daily IV pump; Matt is WeChatting with
Annie, who leaves China in about six hours; David is dozing.
Our hearts go out to you and your whole family. Sending you our love and prayers for peace, strength, and sweet comfort.
ReplyDeleteSending positive thoughts from UT and CO. I am so glad so many siblings have been able to visit, and how nice that Matt can be close by now. Your family is in so many hearts, and in our prayers.
ReplyDeleteI have two LL Bean Cots which would easily allow comfortable [well relatively comfortable} sleeping right next to David. I will call about this and other potential supports I can offer. Love to you all.
ReplyDeleteSending love and many prayers from Maryland
ReplyDeleteI'm praying for you and your family. I miss you and send my love to all of you. Find strength in the Lord.
ReplyDeletePrayers.
ReplyDelete